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Posts Tagged ‘epilepsy medication’

Young Epilepsy Conference

Young Epilepsy Conference 2012

 

The Trabasack Team are delighted to announce their appearance at The Young Epilepsy National Conference. Young Epilepsy, in association and collaboration with Matthew’s Friends are holding a two day National Conference at St John’s Hotel, Solihull on 12th and 13th August.

As parents of a child with Dravet Syndrome, the husband and wife team behind Trabasack are passionate about attending events that raise Epilepsy Awareness and their universally designed product range is ideal for use by children and adults with epilepsy and related conditions. Raising awareness of Dravet Syndrome and the often devastating effects of epilepsy on young people, this important event will help bring together professionals, parents and new developments in the treament and management of the disease.

Son of Trabasack Creator and the Ketogenic Diet

Joe (centre) was on the ketogentic diet for 5 yrs – also pictured Clare Edwards (Trabasack creator), Victor Edwards, Joe’s brother

The co-hosting charity Mathews Friends provides information about a dietary treatment for epilepsy called the ketogenic diet. A high fat, low carbohydrate diet that the Trabasack director’s son followed for 5 years, with tremendous success. In the early days of the treatment they obtained essential advice and support from the charity.

The Young Epilepsy Conference Schedule

The event itself is split into two separate days aimed at different audiences and Trabasack will be present at both with their full product range on display for sale and to answer any questions potential customers may have.


Day 1 – The Complex Epilepsy Conference for Professionals

Friday 12th October is a dedicated conference day at the event for professionals working directly with families of children and young people with complex epilepsy in a community environment. The day will be made up of several sessions :

young epilepsy conference brochure cover

Click the image to see the link where you can download a PDF brochure and booking form of the Young Epilepsy Event

• Diagnosis and Misdiagnosis
• Advances in treatment
• Impact on the wider family
• Case Studies
• Supporting the Family
• Changing Society’s Perception

Talks will be given by UKs foremost experts in the study of epilepsy including:

  • Prof Helen Cross, The Prince of Wales’s Chair of Childhood Epilepsy
  • Dr Sunny Philip, Birmingham Children’s Hospital
  • Dr Archana Desurkar and Dr Krishna Das, Young Epilepsy
  • Epilepsy specialist n
    urses and parents who have experience of living with complex epilepsy.

The Trabasack team will be present all day with their dedicated stand and products on display. Tickets for this event are bookable via the Young Epilepsy website and there are early bird discounts available.


 

 

Day 2 – The Complex Epilepsy Information Day for Parents

conference info for families of children with epilepsy

Click to see a link to download the information and booking form for families

Saturday 13th October is a little bit different to the previous day as it focuses on the expectations and needs of the parents and carers of children and young people with complex epilepsy. It also gives them the chance to meet other families in the same situation and form some valuable support networks and relationships. Topics and sessions throughout the day will include:
• Complex Epilepsy Syndromes and Treatments
• Support through education
• Syndrome-specific group discussions
• Behaviour and impact on the wider family.
Tickets for the second day of the event are bookable now via the Young Epilepsy website or on 01342 832243 the booking line, or click the images to download a conference booking form.

 

The Trabasack Product Range

The Trabasack team will have their whole product range on display, with representatives present to explain exactly how their innovative products can be of beneficial use to those living with epilepsy and related syndromes.

The Trabasack lap tray and bag is an innovative and universally designed product that combines a lightweight tray surface, great for holding media devices, switches, communication aids, food and drink and much more, with a spacious bag compartment for storage of said items. It also includes a soft bean bag tray and is extremely lightweight so can be rested upon any lap without causing any discomfort. The current range includes the Trabasack Curve, designed ergonomically to hug the curves of the body and the smaller Trabasack Mini, designed for smaller devices such as netbooks and iPads. Both these products will be on display at the event.

Trabasack has also recently launched its Media Mount multipurpose mounting device which serves to provide extra support and add extra functionality to their lapdesk products. The Media Mount can support the use of communication aids, tablet devices and even hold simple things such as a bottle of drink in place.

 

Further demonstration of the product in action will be seen at the Young Epilepsy National Conference.

The video below shows Joanna Lumley at a previous Young Epilepsy event at Glyndebourne.