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Posts Tagged ‘dravet conference 2012’

Dravet Conference UK for Professionals and Family 2012

Dravet Conference 2012

In November 2012, The Dravet Syndrome UK charity will be hosting their second annual Family and Professional Dravet Conference and the Trabasack team are happy to be attending. Taking place on 17th November, at The Park Royal Hotel in Warrington the conference has attracted many leading speakers in the field and as the husband and wife team at the centre of the Trabasack Company are parents to a child with Dravet Syndrome, attending the conference is extremely important to them personally as well as professionally. After attending the first event two years ago, Trabasack is back for a second time, after being at the very successful Dravet Conference 2010.

The Trabasack story appeared in the Dravet Syndrome UK’s Spring Newsletter, highlighting how their son was the main inspiration behind the product and how it was developed with his and the needs of others living with Dravet and similar syndromes in mind. The product has since been developed further and has a multitude of users with many different needs.

What is Dravet Syndrome?

A life limiting, genetic condition that causes severe epilepsy, learning disability and global developmental delay in childhood. The seizures are usually hard to treat and do not respond well to epileptic drugs. A scientific paper describing the symptoms can be found here.

This Year’s Event: Dravet Conference 2012

Many fantastic speakers have been confirmed for this year’s event, including Dr Charlotte Dravet herself as the guest of honour. Other speakers include a range of specialist consultants from hospitals across the UK including Alderhey Children’s Hospital in Liverpool and Yorkhill Hospital in Glasgow. Professor Mark Reese and Doctors Chung and Thomas from Wales Epilepsy Research will also be joining the other speakers at the event.

Our son joe laying on a trabasack play tray

Our son Joe enjoying a sensory garden

A range of interesting and essential topics will be discussed in depth including advancements in research, the value of early intervention, alternative treatments including the Ketogenic Diet and much more. There will be also a chance to hear of updates on many of the research projects currently funded by Dravet Syndrome. Anyone with a personal or professional interest in the area can attend the event, with both professional and family tickets available.

Who are Dravet Syndrome UK?

Dravet Syndrome UK is the leading UK charity which works to improve the lives of both adults and children living the Dravet Syndrome and other related sodium channel epilepsies. They achieve this in a number of ways from special events like the conference, to fundraising, medical research and providing support to families and individuals who require it.

The charity has three main aims to advance education, to fund research and to promote health and the Trabasack team are keen to support these goals in any way possible.
Dravet Syndrome is described as a severe form of epilepsy and can cause further issues including difficulty in the development of language, motor skills and social skills.
The second annual conference is sponsored by Nutricia and the Dravet Syndrome Foundation and the Trabasack team will be amongst many attendees and exhibitors.

Trabasack at the Family and Professional Dravet Conference 2012

Trabasack will have and exhibition display stand where product information and the new Media Mount, switch and toy mount will be available to purchase. The full range of Trabasacks and accessories will be on the stand. The most popular one for Dravet children is the Curve Connect because of the option of mounting, toys, iPads, switches and other devices with velcro onto the tray surface. A bumper Trabasack pack including all of the accessories will also be a prize in the Dravet Charity Ball Raffle. The raffle organisers are still looking for donations to the raffle which will include a prize of a chocolate hamper and a gift voucher hamper.

UPDATE

The full ‘tweeted’ notes and information from the conference can be found at on this conference report written up using Storify here:

Dravet Conference tweeted notes